just got home from my radiation appointment. i needed a treat today and decided to drive past pandora’s on the way home to see how long the line was and there was no one there! i haven’t really had many snoballs this year at all and was just kinda craving one since the sun was out and it was kinda warm. i tried something new – coconut stuffed with handmade coconut ice cream! it’s really good and somehow not as sweet as the fruitier flavors i usually go for like mango and strawberry. the ice cream had little chunks of coconut in it! it was just what i wanted.


i haven’t written here for a few days. it was nice to have a weekend off from treatments, a break from the routine of: rushing to finish work; coming home and changing into clothes that don’t have metal on them (surprisingly challenging); eating a snack so i’m not lightheaded or hangry but not too much so i’m not laying on the table with a too-full stomach; driving down around 1:30 for my 2pm appointments to allow time for the near daily disappointment of not finding an open parking spot in the oncology parking lot (which is much closer to the oncology clinic), necessitating a brisk walk from either the parking garage or a street spot on galvez on the other side of tulane avenue. i know it doesn’t sound like a big deal but some days it just feels like a lot. i don’t enjoy rushing around and i don’t like laying on the table feeling my heart beating fast cuz i just power walked 10 minutes down the street to get there on time. so yeah, it was nice to have a couple days where i didn’t have to do all that or even think about it.
my weekend was uneventful though thankfully i managed to focus enough on sunday to knock out most of my taxes that are due on october 15th. and then it was monday and back to the routine. they’d moved my appointment up to 1:30 on monday because of the saints monday night football game so i busted ass to get down there on time. i learned that day that the tech rotation had two new younger techs working in the radiation room i go to. one of the techs from last week was still there but my favorite guy was somewhere else. the treatment was fine, i’m getting used to it i guess. i don’t love it, especially the mask, but i don’t feel like i need anxiety meds anymore at least.
mondays are when i see my doc, after my appointment. so they weigh me and take my blood pressure and put me in a room til he makes it there. i like my radiation doc. he’s young and wears two earrings. he’s kind and has a gentle way about him. he just asked how i was doing and if there were any new side effects or issues or if i had any questions. he’d seen my messages and, well, the best way i can put it is that he was not impressed. he basically said they don’t usually see side effects in the first week. so now i’m worried he thinks i’m a hypochondriac! lol he didn’t belittle me or anything just said to keep him updated if anything got any worse and that he did have anti-nausea meds to prescribe for me if i need them.
he started to ask me about my scalp, the skin, and if he’d talked to me about moisturizer… and then he stopped himself and said, oh, actually, you won’t probably need to deal with that. what we are treating is very deep inside my head and while i don’t really understand how that changes anything, he seemed to be indicating that i won’t probably have any issues with my skin/scalp in the treatment area. so that was new to me and good news. although since everyone is different in how they react, never say never.
he seemed happy with my progress and that i was tolerating it well. and he said he thinks i’m going to continue to tolerate the rest of the treatment fine. he’s optimistic it won’t affect me much. so i will try to also be optimistic about that.
yesterday was kind of a shitty day but it was my own fault. i have been going to bed at 9pm most nights to try to get a good night’s sleep, given that my cats are assholes and wake me up between 5-6 every morning for their breakfast. and that had been working great. but monday night i stayed up watching the awful, disappointing saints game and even though i stopped watching at the end of the 3rd quarter, i guess i was amped up and just couldn’t fall asleep. i don’t think i got to sleep until at least 11:30-12am. and the cats were particularly bad and started knocking over loud things at 5am sharp. so i was kind of a zombie all day, which made me feel pretty awful. i made it through my morning of work and picking up donations for el pueblo but after my treatment i just felt icky. i tried to take a nap but i’m a horrible napper, i just couldn’t do it. but i did get caught up on sleep last night finally and felt much better this morning.
today’s treatment was fine but i’m just increasingly aware of the process of having my brain irradiated. they always say you don’t feel anything and i guess on the grand scale of things, i don’t. but even without the audible prompt of the continuous tone of the radiation machine, i can literally feel like a pressure change – like folks who are sensitive to barometric pressure changes – when the beam starts penetrating my head. and that awful fucking chlorine-like smell! it’s getting fainter but it’s still there. so while it doesn’t hurt or anything, it’s really not a pleasant experience for me. but today i counted my deliberately slow breaths continuously and got to 65; before i’d been counting to 10 and starting over, as this is how the wind down exercise on my headspace app does it. (this is the app i listen to in order to shut my brain off at night and go to sleep. they do a little wind down mediation type thing before telling you a really boring, very slowly spoken story which works like a charm to knock me out usually in 10 minutes.) i’m really grateful that the actual amount of time i’m on the table is only a couple of minutes cuz it would be a lot harder to have to endure longer periods of time.
i did feel a little nauseated today when i got off the table and was walking to the car but thankfully by the time i got to pandora’s it had passed. i might try again to take a nap cuz i’m feeling pretty drowsy right now.
so that’s where i’m at. 8 down, 22 more to go! halfway through my second week. onward!
thanks for reading, for following along, and for all your check-ins and financial donations. it sometimes feels like a very lonely thing to be going through but i am so grateful for my wide community of folks who are holding space for me. i love and appreciate you all!













